Genome Editing for the treatment of human Disease Network

GenEHumDi recommended activities

Events in November 2025

Monday Tuesday Wednesday Thursday Friday Saturday Sunday
October 27, 2025

2025 ARRIGE Annual Meeting :Access and Affordability of Gene Therapies - Challenges for Genome Editing

October 28, 2025 October 29, 2025

Join us at ARRIGE annual meeting for a two half-day meeting exploring the pressing ethical, social, and policy issues surrounding access to and affordability of emerging gene therapies developed through genome editing technologies. The event will bring together researchers, clinicians, policy makers, regulators, biotech entrepreneurs, pharma and patient advocates to discuss equity, innovation, and global health implications.

2025 ARRIGE Annual MeetingOctober 28 & 29, 2025

October 28, 2025 October 29, 2025

2025 ARRIGE Annual Meeting :Access and Affordability of Gene Therapies - Challenges for Genome Editing

October 28, 2025 October 29, 2025

Join us at ARRIGE annual meeting for a two half-day meeting exploring the pressing ethical, social, and policy issues surrounding access to and affordability of emerging gene therapies developed through genome editing technologies. The event will bring together researchers, clinicians, policy makers, regulators, biotech entrepreneurs, pharma and patient advocates to discuss equity, innovation, and global health implications.

2025 ARRIGE Annual MeetingOctober 28 & 29, 2025

October 28, 2025 October 29, 2025

October 30, 2025
October 31, 2025
November 1, 2025

EMBO CourseCRISPR-CasFrom biology to therapeutic applications


November 2, 2025 November 5, 2025

EMBO CourseCRISPR-CasFrom biology to therapeutic applications


November 2, 2025 November 5, 2025

EMBO CourseCRISPR-CasFrom biology to therapeutic applications


November 2, 2025 November 5, 2025

EMBO CourseCRISPR-CasFrom biology to therapeutic applications


November 2, 2025 November 5, 2025

November 6, 2025
November 7, 2025
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November 27, 2025
November 28, 2025
November 29, 2025
November 30, 2025

Last GenEHumDi Blog entry

WG3 & WG5 joint meeting – Ankara 25.9.2025

Mapping and Evaluating Delivery Methods for GeneEditing in Clinical Applications GeneHumdi COST Action's Working Group 3 (Delivery) and Working Group ...

Welcome

A woman in a laboratory

Welcome to the Genome Editing for the treatment of human Disease Network (GeneHumdi | COST action CA21113) Website. We are Academia and industry scientist, translational scientist, clinicians, regulatory agents, and industry partners dedicated to the improvement and translation of Gene Editing protocols to treat diseases lacking sound medical care or susceptible of increase safety and control of the therapeutic interventions through the implementation of precision gene medicine.

About

A person with test tubes

Recent advances on genome editing (GE) technologies have opened the possibility of treating diseases through precise modifications of patients’ genomes. Impressive results have been achieved on animal models of several genetic disorders, infectious diseases as well as cancer and several clinical trials are already on going. However, the inadequate integration of the results of academic research into the research development strategy of pharmaceutical companies, the insufficient interest of academic institution in regulatory science and the absence of established standards to well acceptable risk-benefit ratio by regulatory agencies, preclude its general application for treating human diseases. Therefore, the translation of the GE technologies to address public health needs, require a strong collaboration between basic and clinical research, regulatory bodies and the different stake holders involved for each application. There are several networks to improve or analyse GE technologies for different applications, however, no one cover all the actors involved in gene therapy translation.

The principal aim of the GeneHumdi Action is to bring together pharmaceutical companies, academic institution, science and regulatory agencies, biotechnology firms, patient advocacy association and information technology, in order to tackle knowledge fragmentation with the aim to accelerate the translation of GE technologies to the treatment of human diseases. GeneHumdi is supported by COST (European Cooperation in Science and Technology) which is a funding organisation for research and innovation networks operating in Europe since 1971. In their organigram, GeneHumdi nourishes from the ideas exchange of Management Committee (MC) members from over 24 EU Countries and MC and other members are organized into Working Groups (WG) to distribute GeneHumdi workload and allocate specific question to dedicated experts in each field.

Contact

Action Contacts:

Dr karim BENABDELLAH

Action Chair

0034958 715 500

karim.benabdel@genyo.es

Dr Alessia CAVAZZA

Action Vice Chair

02079052787

a.cavazza@ucl.ac.uk

COST Staff:

Dr Marco

Science Officer

+3225333814

federica.ortelli@cost.eu

Ms Aldona GEMBALIK

Administrative Officer

+32 2 5333825

aldona.gembalik@cost.eu

Leadership:

Role Leader Phone Email
Action Chair Dr Karim BENABDELLAH 0034958 715 500 karim.benabdel@genyo.es
Action Vice Chair Dr Alessia CAVAZZA 02079052787 a.cavazza@ucl.ac.uk
Grant Holder Scientific Representative Dr Karim BENABDELLAH 0034958 715 500 karim.benabdel@genyo.es
Science Communication Coordinator Dr Fco. Javier Molina Estévez +34 623069770 javier.molina@genyo.es
Grant Awarding Coordinator Dr Paula RIO 0034913460890 paula.rio@ciemat.es
WG2 Leader Dr Claudio Mussolino +49761 270-77738 claudio.mussolino@uniklinik-freiburg.de
WG3 Leader Dr Melita Vidaković +381112078326 melita@ibiss.bg.ac.rs
WG4 Leader Dr. Carla Fuster +49 76127077747 carla.fuster.garcia@uniklinik-freiburg.de
WG5 Leader Dr Alessia Cavazza 02079052787 a.cavazza@ucl.ac.uk
WG6 Leader Dr Carsten Werner Lederer 22392764 Lederer@cing.ac.cy
WG7 Leader Dr Fco. Javier Molina Estévez + 34 623069770 javier.molina@genyo.es

Additional roles:

Role Leader Phone Email
International Advisor Dr Marcello MARESCA +46 (0)706315840 Marcello.Maresca@astrazeneca.com
ITC Coordinator Prof Merita XHETANI +35 5672059369 merita.xhetani@fshn.edu.al
WG2: Improvement of GE technologies Co-Leader Dr Francisco MARTIN +34 665287238 francisco.martin@genyo.es
WG3: Delivery strategies Co-Leader Dr karim BENABDELLAH +34 958 715 500 karim.benabdel@genyo.es
WG4: Safety issues: Monitoring and standardization Co-Leader Dr Giandomenico TURCHIANO 02039783664 g.turchiano@ucl.ac.uk
WG5: Translation into the clinic Co-Leader Dr Paula RIO +34 913460890 paula.rio@ciemat.es
WG6: Technological transfer and industry Co-Leader Dr Monika PAULE +37 060611496 monika@caszyme.com
WG6: Technological transfer and industry Co-Leader Dr Philippe DUCHATEAU 0181691600 philippe.duchateau@cellectis.com
YRI Coordinator Dr Laura TTORELLA +34 611676918 ltorella@alumni.unav.es
Working Groups Scientific Coordinator Dr Francisco MARTÍN +34 665287238 francisco.martin@genyo.es
STSM Coordinator Dr Fatma ZEHRA HAPIL +90 5072366614 fatmazehrahapil@gmail.com